DEANNA MORALES
RHABDOMYOSARCOMA JOURNEY
My Sarcoma Journey
This video was released in November 2024, following 19 months of intensive treatment, which included numerous surgeries and aggressive chemotherapy. Just as Deanna made the decision to share her story, she received the devastating news that the cancer had returned.
What is Sclerosis Rhabdomyosarcoma
It’s a rare subtype of rhabdomyosarcoma (RMS), a cancer originating in muscle tissue.
Sclerosing rhabdomyosarcoma (SRMS) is an exceedingly rare variant of rhabdomyosarcoma, with fewer than 30 documented cases reported in the English-language literature to date...
and Deanna Morales is one of them.
Rhabdomyosarcoma is a soft tissue sarcoma that forms from muscle cells, and is a rare cancer affecting the connective tissues, including muscles, bones, nerves, cartilage, and blood vessels.
Rhabdomyosarcoma itself is already rare, accounting for about 1% of all adult cancer cases.
Within that, sclerosing rhabdomyosarcoma is even rarer, making up only a tiny fraction of RMS cases. Because of its rarity, there is limited data on how many adult cancer cases are attributed to sclerosing RMS, making it even more challenging to find effective treatment options. Since Deanna’s recurrence in November 2024, she has traveled across the country in search of solutions, consulting with medical experts to explore potential treatments for this aggressive and rare disease.